This paper examines the legal and ethical aspects of traceback testing, a process in which patients who have been previously diagnosed with ovarian cancer are identified and offered genetic testing so that their family members can be informed of their genetic risk and can also choose to undergo testing. Specifically, this analysis examines the ethical and legal limits in implementing traceback testing in cases when the patient is deceased and can no longer consent to genetic testing.

What does it mean to devote yourself wholly to helping others? In Strangers Drowning, Larissa MacFarquhar seeks out people living lives of extreme ethical commitment and tells their deeply intimate stories; their stubborn integrity and their compromises; their bravery and their recklessness; their joys and defeats and wrenching dilemmas. A couple adopts two children in distress. But then they think: If they can change two lives, why not four? Or ten? They adopt twenty. But how do they weigh the (...) needs of unknown children in distress against the needs of the children they already have? Another couple founds a leprosy colony in the wilderness in India, living in huts with no walls, knowing that their two small children may contract leprosy or be eaten by panthers. The children survive. But what if they hadn't? How would their parents' risk have been judged? A woman believes that if she spends money on herself, rather than donate it to buy life-saving medicine, then she's responsible for the deaths that result. She lives on a fraction of her income, but wonders: when is compromise self-indulgence and when is it essential? We honor such generosity and high ideals; but when we call people do-gooders there is skepticism in it, even hostility. Why do moral people make us uneasy? Between her stories, MacFarquhar threads a lively history of the literature, philosophy, social science, and self-help that have contributed to a deep suspicion of do-gooders in Western culture. Through its sympathetic and beautifully vivid storytelling, Strangers Drowning confronts us with fundamental questions about what it means to be human. In a world of strangers drowning in need, how much should we help, and how much can we help? Is it right to care for strangers even at the expense of those we are closest to? Moving and provocative, Strangers Drowning challenges us to think about what we value most, and why. From the Hardcover edition. (shrink)

BackgroundBrazil is among the sixteen countries that conducts the most clinical trials in the world. It has a system to review research ethics with human beings made up by the National Commission on Research Ethics and 779 Research Ethics Committees, in 2017. The RECs are supposed to follow the same rules regarding their membership, although the RECs that review Social Science and Humanities researches must respect Resolution 510/16. There are Brazilian RECs that review SSH and clinical trials. This study aimed (...) to analyze the academic professional profile of the members of the CONEP and Brazilian RECs, their adequacy to the norms, and the challenges faced by the REC’s Chairs to compose their membership. MethodsAll 779 Brazilian RECs’ chairs are invited to fill in a questionnaire informing academic and professional background of the RECs members, and 92 answered. However, eight were excluded for having sent an incomplete questionnaire, leaving a total of 84 participants. The variables were described by absolute and relative frequency. The Chi-square test and ANOVA was used to analyze regional differences related difficulties to compose the committee. The significance level was 95%. ResultsThe results showed a predominance of members from the biomedical area, while 33% were members of the Social Sciences and Humanities and 5.5% were community representatives. As for the academic degree, there were PhD and masters. The divergences in relation to the guidelines result from the difficulties of having participants in some areas and the little interest in the work carried out by the committees.ConclusionThe RECs are partially adequate to the norms and their performance may be compromised by the low participation of community representatives. The organization of REC’s specifics to review biomedical research could improve the ethical review process, ensuring a membership more qualified for these protocols. (shrink)

The article is concerned with the everyday activities of sociology, focusing on ethnography. It argues that empirical study of the ethnomethods of ethnography allows for a deeper insight into the dynamics and procedures of this research practice. Based on empirical data from two ethnographic studies, I suggest to observe how such an investigation is conducted in various situations: in the field, on the ethnographer’s desk, in data sessions, in conferences and in written papers. This serves to gather and produce empirical (...) traces from the field. These are de- and re-contextualized while they are taken into the sociological field. This process can be analyzed drawing on Goffman’s notion of Frame Analysis, particularly drawing on his notion of keyings. Ethnography can thus be described as a trans-situational practice that systematically couples situations and communications in order to understand and reconstruct other social practices for sociological reasons. (shrink)

Normal 0 21 false false false MicrosoftInternetExplorer4 O presente artigo tem por objetivo abordar o tema dos direitos humanos e cidadania sob a perspectiva da filosofia política de Hannah Arendt. O artigo retrata, em sua primeira parte, a ilusáo fundacionista dos direitos humanos ante a situaçáo dos apátridas e refugiados, situaçáo que leva a autora a formular o conceito de cidadania como o direito a ter direitos . Na sequência, analisa os elementos que configuram sua teoria política, tais como: liberdade, (...) açáo, pluralidade e espaço público, os quais, articulados entre si, permitem a formaçáo de um conceito de cidadania baseado na real participaçáo dos cidadáos na organizaçáo política de uma comunidade, em contrapartida a um conceito meramente formal de cidadania. Para, finalmente, abordar o sistema de conselho, instância em que a cidadania é compreendida como açáo vivenciada no espaço público, favorecendo, assim, a possibilidade de efetivaçáo dos direitos humanos, exercidos como dignidade política dos cidadáos. (shrink)

O objetivo central deste artigo é desenvolver a ideia sobre a utilidade ética da pecuária industrial com ênfase nas doenças zoonóticas a partir do referencial teórico de Peter Singer. Com o aumento da demanda em âmbito global por proteína animal, foram empreendidos novos métodos de manejo que submetem os animais a situações opostas ao bem-estar. Além do mais, essas mudanças são responsáveis pela ascensão das doenças zoonóticas. Desse modo, o presente trabalho trata-se da revisão bibliográfica dos livros Ética Prática e (...) Libertação Animal do Peter Singer e artigos buscados nas plataformas: Scielo, Elsevier e Google Acadêmico. Assim, conclui-se que a pecuária industrial possui uma utilidade duvidosa dentro dos limites da pesquisa porque gera maior desprazer do que prazer. (shrink)

This paper presents Integrated Information Theory (IIT) 4.0. IIT aims to account for the properties of experience in physical (operational) terms. It identifies the essential properties of experience (axioms), infers the necessary and sufficient properties that its substrate must satisfy (postulates), and expresses them in mathematical terms. In principle, the postulates can be applied to any system of units in a state to determine whether it is conscious, to what degree, and in what way. IIT offers a parsimonious explanation of (...) empirical evidence, makes testable predictions, and permits inferences and extrapolations. IIT 4.0 incorporates several developments of the past ten years, including a more accurate translation of axioms into postulates and mathematical expressions, the introduction of a unique measure of intrinsic information that is consistent with the postulates, and an explicit assessment of causal relations. By fully unfolding a system's irreducible cause-effect power, the distinctions and relations specified by a substrate can account for the quality of experience. (shrink)

Journal Name: Semiotica - Journal of the International Association for Semiotic Studies / Revue de l'Association Internationale de Sémiotique Volume: 2013 Issue: 195 Pages: 169-196.

No espaço midiático, o culto à aparência corporal propaga a imagem de um corpo feminino bonito, jovem e magro. Com relação à mulher que vive no campo, a imagem difundida é de uma mulher alheia aos cuidados com a beleza, “desleixada”. O objetivo dessa pesquisa foi avaliar a satisfação com a imagem corporal e a influência dos meios de comunicação em mulheres em um assentamento rural de Jataí-Go. Foi aplicado o Body Shape Questionnaire a 25 mulheres e realizada entrevista com (...) oito mulheres. Os resultados indicam que maioria das participantes está satisfeita com a sua imagem corporal, embora afirmem que realizariam algum procedimento cirúrgico para fins estéticos. (shrink)

Theories of cognitive development must address both the issue of how children bring their knowledge to bear on behavior in-the-moment, and how knowledge changes over time. We argue that seeking answers to these questions requires an appreciation of the dynamic nature of the developing system in its full, reciprocal complexity. We illustrate this dynamic complexity with results from two lines of research on early word learning. The first demonstrates how the child's active engagement with objects and people supports referent selection (...) via memories for what objects were previously seen in a cued location. The second set of results highlights changes in the role of novelty and attentional processes in referent selection and retention as children's knowledge of words and objects grows. Together this work suggests that understanding systems for perception, action, attention, and memory, and their complex interaction, is critical to understand word learning. We review recent literature that highlights the complex interactions between these processes in cognitive development and point to critical issues for future work. (shrink)

When animals share decisions with others, they pool personal information, offset individual errors and, thereby, increase decision accuracy. This is termed ‘swarm intelligence.’ But what if those decisions involve conflicts of interest between individual decision-makers? Should animals share decisions with individuals whose goals are different from, and partially in conflict with, their own? A group decision model developed by Larissa Conradt and colleagues finds that, contrary to intuition, conflicting goals often increase both decision accuracy and the individual gains derived (...) from shared decisions. Thus, conflicts of interest, far from hampering effective decision making, can actually improve decision outcomes for all stakeholders, as long as they also have some goals in common. By contrast, conflict-free decisions shared by animals which all have the same goals are often surprisingly poor. (shrink)

This paper reads Antigone from the perspective of the Chorus. Whereas most interpreters read Antigone from the perspective of Creon and Antigone’s respective laws, I maintain that the protagonists represent laws that are distinctly apolitical. Alternatively, I argue that the Chorus make the polis—past, present, and future—the center of their thought and action and are therefore uniquely political. Through close attention to the Chorus’s composition as a body that is both one and many at the same time, and by tracing (...) their evolving position throughout the action of the drama and in their choral odes, I argue that they model a reflective and political orientation to judgment rooted in plurality, tradition, and innovation. (shrink)

This study investigates the nexus between giving, belonging and Jewishness in South Africa. Charitable interactions are as much manifestations of inequalities as an expression of the giving individual’s desire to alleviate them. Structuring aspects like class, race, economics, and post-apartheid politics are at the basis of this study. At the same time, though, it is individual agency reproducing inequalities and making sense of the ambiguity of the charitable interaction. In the context of the Jewish community in South Africa this analysis (...) shows how the community’s organisations, practices and concepts are connected to charitable giving. The author carved out three dimensions, which are entangled, reinforced, or at times contradict each other: Belonging, diaspora and charitable giving. Along with shared values and practices it relates to, volunteering or charitable giving connects one individual to a group, while possibly excluding another from it. Expressing belonging to the Jewish collective as a diaspora community, relates individuals or collectives to the triadic relationship between local diaspora group, host society and homeland and other local communities of the same diaspora. (shrink)

Causal reductionism is the widespread assumption that there is no room for additional causes once we have accounted for all elementary mechanisms within a system. Due to its intuitive appeal, causal reductionism is prevalent in neuroscience: once all neurons have been caused to fire or not to fire, it seems that causally there is nothing left to be accounted for. Here, we argue that these reductionist intuitions are based on an implicit, unexamined notion of causation that conflates causation with prediction. (...) By means of a simple model organism, we demonstrate that causal reductionism cannot provide a complete and coherent account of ‘what caused what’. To that end, we outline an explicit, operational approach to analyzing causal structures. (shrink)

As social, locative, and mobile media render the intimate public and the public intimate, this volume interrogates how this phenomenon impacts art practice and politics. Contributors bring together the worlds of art and media culture to rethink their intersections in light of participatory social media. By focusing upon the Asia-Pacific region, they seek to examine how regionalism and locality affect global circuits of culture. The book also offers a set of theoretical frameworks and methodological paradigms for thinking about contemporary art (...) practice more generally. (shrink)

The paper deals with the general peculiarities of numerals. Cases where the sense of numeral cannot simply be explained by the idea of counting, of number, or of order are considered. Special types of texts folklore on the one band, propaganda on the other hand - are analyzed. For the latter the examples from two Soviet central official newspapers - Pravda and lzvestija of May 1986 have been chosen. These texts partially reflect common stylistic features of Soviet propagandistic discourse of (...) the "period of stagnation"; their specificity is caused by the special situation, which obtained in the country in those days - the catastrophe in the atomic power station in Chemobyl. It is claimed that all the considered examples reflect several aspects of meaning of numerals contained in their general semantics. Thus, the development of the evaluative meaning is explained by the semantics of degree contained in the numerals. These data contribute to Frege's idea of relativity of number, but from another, purely linguistic, point of view. (shrink)

Paul Ricoeur, em “O si-mesmo como outro” define sua perspectiva ética como “o desejo de viver bem com e para os outros em instituições justas”. Tal concepção possui uma tríplice estrutura, a saber: a ipseidade, a alteridade e a igualdade. Sendo apresentadas como a “estima de si”, a “solicitude” e a “justiça”, momentos determinantes para que se possa responder à pergunta sobre a identidade ética, norteadora de sua filosofia moral – “ quem é o sujeito capaz de imputação moral?”. Por (...) isso, cumpre ao presente artigo analisar cada um de seus elementos constitutivos a fim de compreender sua lógica interna, bem como ressaltar o viés aristotélico-teleológico da filosofia ricoeuriana. (shrink)

Theories of cognitive development must address both the issue of how children bring their knowledge to bear on behavior in‐the‐moment, and how knowledge changes over time. We argue that seeking answers to these questions requires an appreciation of the dynamic nature of the developing system in its full, reciprocal complexity. We illustrate this dynamic complexity with results from two lines of research on early word learning. The first demonstrates how the child's active engagement with objects and people supports referent selection (...) via memories for what objects were previously seen in a cued location. The second set of results highlights changes in the role of novelty and attentional processes in referent selection and retention as children's knowledge of words and objects grows. Together this work suggests that understanding systems for perception, action, attention, and memory, and their complex interaction, is critical to understand word learning. We review recent literature that highlights the complex interactions between these processes in cognitive development and point to critical issues for future work. (shrink)

In § 60 of the Critique of Judgment, entitled ‘On the doctrine of method of taste,’ Kant suggests that the study of so-called humaniora (ancient Roman and Greek literature) will help one to become a good artist. I will argue that a proper, namely emotional, engagement with humaniora will further the two components of humanity in ourselves: the feeling of sympathy and the ability to communicate feelings. I will discuss two options of how a strengthening of these two components might (...) contribute to the creation of good artworks: it will help one to create artworks that arouse the universal communicable pleasure in the beautiful, or it will help one to create artworks that arouse sympathetic feelings. Siding with the latter option, I will argue that emotions can contribute to the enlivening of aesthetic ideas and, thus, to good art. (shrink)

Decades of feminist research has revealed the dismal labor conditions for women in global supply chains. Given this reality, why does Walmart use women in its supply chain as icons of female empowerment? Combining the Marxist notion of a “spatial fix” with a feminist analysis of symbolic resources, we develop the concept of a “gender fix” to understand a growing field of corporate programs that use women as symbolic resources to restore the image of firms as ethical actors. The gender (...) fix encompasses a wide range of corporate empowerment strategies to capture a broad pattern of action. A second term is necessary to situate Walmart’s particular empowerment strategy within its corporate positioning as leader of a vast supply chain network. We identify Walmart’s particular empowerment strategy as “outsourcing feminism.” Walmart’s use of the outsourcing feminism strategy stems from its commanding position in supply chains, which allows it to extract a symbolic surplus from women business owners from whom it sources products. When Walmart argues that it uplifts these women, its strategy targets the consumer end of the supply chain, emphasizing sourcing practices that promote a racially diverse, selfless, and middle-class femininity. In so doing, Walmart deflects attention from the treatment of women in other segments of its supply chain (e.g., its stores and factories). (shrink)

Research indicates that consumers are particularly concerned about the safety of meat. More highly processed meat is perceived as more unsafe than fresh or natural meats, i.e., consumers trust processed meat less. This paper studies the relationship between perceived trust and day-to-day purchase behavior for meat, giving special attention to the degree of meat processing. Controlling for trust in food chain actors and demographic and socio-economic variables, actual meat purchases of Canadian households are linked to answers from a commissioned food (...) attitudes survey completed by the same households. Expenditures for processed and total meat (but not for fresh meat) are significantly different by three levels of trust in the food industry. Consumer with the lowest trust levels consume less (especially of processed meat) compared to those with higher trust levels. However, in a multivariate setting, trust shows no effect on fresh or processed meat purchases with or without demographic and socio-economic control variables, suggesting that the impact of trust on meat purchases is only small. However, the low trusting consumer segment could potentially be a target for marketing strategies focused on reputation and quality to increase sales in this particular group. (shrink)